Hey, Sparkle, I don't know how it relates to AYP, but my sister has NF1 and she gets sists occasionally. Some can be very dangerous and she's had a couple in her spine. But from what I've heard, people can lead/live very long lives despite the disease. I'm not sure if it's considered a "remission", per say, but maybe it's just the fact that the growths aren't in as dangerous a spot at times and if they are they can be removed.
I was interested in this and also was wondering if amaroli would have any impact on the sists, since it's supposed to be good for any ailment. I'm just not sure if I could broach the subject with her, "Hey, I heard that drinking urine may do wonders for you". [8)]
Anyway, just thought I'd add my two cents.
VIL